Summary
Vast amounts of information on medicines is available, especially online, but it is very hard to know what is reliable or even relevant for a specific patient. And, while each medicine comes with a detailed information leaflet, patients often find these difficult to read and understand.
This is an issue because when patients lack important information about their treatments, they may not take them correctly and this can result in further health problems. The OECD (Organisation for Economic Cooperation and Development) estimates that poor medication adherence may contribute to around 200 000 premature deaths in Europe every year.
The aim of Gravitate-Health is to develop a digital health information tool called the Gravitate Lens (G-Lens). As the name suggests, the G-Lens will focus (but not conceal or filter) approved information on medicines and guide patients to understandable, trustworthy, up-to-date information that meets the patient’s needs and fits with their health context and literacy levels. The functionality of the G-Lens will be supported by an open source digital platform.
More broadly, the project hopes to demonstrate that by making information on medicines more accessible and understandable, patients will be more likely to take their medicines correctly, resulting in better health outcomes and quality of life.
All stakeholders relevant to digital health information are involved in the project, including patient representatives, regulators, ministries, digital technology experts and more.
In addition to the open source platform underlying the G-Lens, the project will produce a white paper with recommendations on realistic strategies on the future use of digital services like electronic product information can be used to further minimise the risks associated with incorrect adherence to advice on medicines.
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The GRAVITATE-Health project has devised a set of personas to guide its work on the G-Lens, a piece of open-source software which will help people zoom in to the information on a medicine that applies to them as individuals. ###
Personas are fictional but realistic descriptions of typical end-users of the product based on real-world data. After collecting the raw data from multiple sources, the project partners clustered the end-users based on recurring attributes, merging similar clusters and eliminating irrelevant ones. These segments represent the entire range of diversity represented in the raw data. The result was three end-user groups and six distinct personas: Maria, Filippo, Amalia, Pedro, Peter and Antonio.
From a smoker with IBS to a child with a feeding tube and the sibling of someone with Down’s Syndrome, we meet a diverse group of people whose circumstances represent those of a wide swathe of the population.
The GRAVITATE-Health personas are being used by the project partners to give everyone a common understanding of the end-users of the G-Lens. They are just the first instalment in a suite of user research tools that will be part of a continuous, iterative, living toolkit that will evolve as more data become available.
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Participants
Show participants on mapEFPIA companies
- Astrazeneca AB, Södertälje, Sweden
- Bayer Aktiengesellschaft, Leverkusen, Germany
- Eli Lilly And Company LTD, Basingstoke, United Kingdom
- F. Hoffmann-La Roche AG, Basel, Switzerland
- Grunenthal GMBH, Aachen, Germany
- Janssen Pharmaceutica Nv, Beerse, Belgium
- Mdsol Europe LTD, London, United Kingdom
- Mylan Ire Healthcare Limited, Dublin, Ireland
- Novartis Pharma AG, Basel, Switzerland
- Pfizer Limited, Sandwich, Kent , United Kingdom
- UCB Biopharma, Brussels, Belgium
Universities, research organisations, public bodies, non-profit groups
- Agencia Espanola De Medicamentos Y Productos Sanitarios, Madrid, Spain
- Agentschap College Ter Beoordeling Van Geneesmiddelen, Utrecht, Netherlands
- Akershus Universitetssykehus Hf, Lorenskog, Norway
- Beth Israel Deaconess Medical Center, Inc Non Profit Corporation, Boston Ma, United States
- Echalliance Company Limited By Guarantee, Dublin, Ireland
- Hl7 International Fondation, Brussels, Belgium
- Karolinska Institutet, Stockholm, Sweden
- Kobenhavns Universitet, Copenhagen, Denmark
- Oslo Universitetssykehus Hf, Oslo, Norway
- Rijksinstituut Voor Volksgezondheid En Milieu, Bilthoven, Netherlands
- Servicio Madrileno De Salud, Madrid, Spain
- Spms - Servicos Partilhados Do Ministerio Da Saude Epe, Lisboa, Portugal
- Statens Legemiddelverk, Oslo, Norway
- The European Institute For Innovation Through Health Data, Gent, Belgium
- Trinity College Dublin, Dublin, Ireland
- Universidad Politecnica De Madrid, Madrid, Spain
- Universita Cattolica Del Sacro Cuore, Milan, Italy
- Universitetet I Oslo, Oslo, Norway
- Universitetssykehuset Nord-Norge Hf, Tromso, Norway
- University College Dublin, National University Of Ireland, Dublin, Dublin, Ireland
Small and medium-sized enterprises (SMEs) and mid-sized companies (<€500 m turnover)
- Datawizard SRL, Roma, Italy
- Empirica Gesellschaft Fur Kommunikations Und Technologieforschung Mbh, Bonn, Germany
- Guardtime Ou, Tallinn, Estonia
- Himss Europe GMBH, Berlin, Germany
- Mindview Symvouloi Epixeiriseon Kaierevnas Etaireia Periorismenis Efthynis, Athens, Greece
- Norsk E Helse As, Oslo, Norway
- Predictby Research And Consulting S.L., Barcelona, Spain
- The Synergist, Bruxelles, Belgium
- Trifork Public As, Aarhus C, Denmark
Patient organisations
- Forum Des Patients Europeens, 1040, Belgium
Associated partners
- Datapharm Limited, Leatherhead, United Kingdom
Third parties
- Synergist Services, Bruxelles, Belgium
Participants | |
---|---|
Name | EU funding in € |
Agencia Espanola De Medicamentos Y Productos Sanitarios | 70 000 |
Agentschap College Ter Beoordeling Van Geneesmiddelen | 197 375 |
Akershus Universitetssykehus Hf | 282 500 |
Datawizard SRL | 402 313 |
Echalliance Company Limited By Guarantee | 279 000 |
Empirica Gesellschaft Fur Kommunikations Und Technologieforschung Mbh | 534 554 |
Forum Des Patients Europeens | 302 725 |
Frisq Holding AB (left the project) | 93 338 |
Guardtime Ou | 155 156 |
Himss Europe GMBH | 268 375 |
Hl7 International Fondation | 729 429 |
Karolinska Institutet | 429 966 |
Kobenhavns Universitet | 126 250 |
Mindview Symvouloi Epixeiriseon Kaierevnas Etaireia Periorismenis Efthynis | 124 625 |
Norsk E Helse As | 282 500 |
Open Evidence (left the project) | 61 107 |
Oslo Universitetssykehus Hf | 127 000 |
Predictby Research And Consulting S.L. | 295 938 |
Servicio Madrileno De Salud | 104 344 |
Spms - Servicos Partilhados Do Ministerio Da Saude Epe | 141 000 |
Statens Legemiddelverk | 1 325 |
The European Institute For Innovation Through Health Data | 293 929 |
The Synergist | 91 813 |
Trifork Public As | 368 000 |
Trinity College Dublin | 314 116 |
Universidad Politecnica De Madrid | 740 804 |
Universita Cattolica Del Sacro Cuore | 151 813 |
Universitetet I Oslo | 1 983 896 |
Universitetssykehuset Nord-Norge Hf | 163 750 |
University College Dublin, National University Of Ireland, Dublin | 5 875 |
Third parties | |
Name | Funding in € |
Synergist Services | 157 188 |
Total Cost | 9 280 004 |